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#246: Back to Global Genes Pt 2

October 2, 2019

Copying homework is exactly what you should do.

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Tags USP7, Global Genes, advocacy, storytelling
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#38: These People Just Don't Get Tired

October 7, 2015

This week, part 2 of 2 about the Global Genes conference. I talk about the untiring advocates. Where they came from. What brought them here. And what makes them keep going.

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Tags Global Genes, Run For Rare, Saving Case and Friends, The Joshua Frase Foundation, Bonner Paddock, Hunter Syndrome, Myotubular Myopathy, Batten Disease
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#37: Learning to Ruffle Feathers

September 30, 2015

This week, ruffling feathers. What that means. What we know we need to do now, to get stuff done and help Tess.  

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Tags Global Genes, genetics, rare disease, patient-driven, precision medicine, Matt Wilsey, Grace Wilsey Foundation, Perlstein Lab, Ethan Perlstein, Seth Mnookin
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Start at the beginning.

I've been writing about Tess since February 2014.

If you want to read more about my life with Tess, head over to my personal blog, bobigelow.com, and start with the first post.


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