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#61: Reach > Grasp

March 16, 2016

This week, Tess is getting ambitious. Every day we help her do more. But we're getting antsy for the real work to begin.  

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Tags advocacy, Baylor, genetics, NGLY1, Matt Wilsey
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#37: Learning to Ruffle Feathers

September 30, 2015

This week, ruffling feathers. What that means. What we know we need to do now, to get stuff done and help Tess.  

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Tags Global Genes, genetics, rare disease, patient-driven, precision medicine, Matt Wilsey, Grace Wilsey Foundation, Perlstein Lab, Ethan Perlstein, Seth Mnookin
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#28: The Dark Night of Uncertainty

July 29, 2015

This week, genetics. The mystery of Tess. Are we ready to give up?  

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Tags genetics, Seth Mnookin, Matt Might, Matt Wilsey, rare disease, orphan disease, Manton Center for Orphan Disease Research
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Start at the beginning.

I've been writing about Tess since February 2014.

If you want to read more about my life with Tess, head over to my personal blog, bobigelow.com, and start with the first post.


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