We launch our foundation with a huge blowout—a gala at our house for our gal Tess. What does it mean, and how do people respond?
Read More#40: Don't Push This Button
This week, we're getting back into it with language. T has increasingly complex thoughts and wishes, and we gotta unlock those for her. Hitting it hard with signing, talking, and maybe even some AAC devices.
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#37: Learning to Ruffle Feathers
This week, ruffling feathers. What that means. What we know we need to do now, to get stuff done and help Tess.
Read More#30: The Genetic Mystery Continues
This week, our next move in unpuzzling the genetics of Tess. We enroll with CrowdMed, to crowdsource it up. Will it give us some answers at last?
Read More#28: The Dark Night of Uncertainty
This week, genetics. The mystery of Tess. Are we ready to give up?
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