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#418: Start Here

January 18, 2023

So you or someone you love has been diagnosed with Hao-Fountain Syndrome. Now what?

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Tags foundation, nonprofit, fundraising, biorepository, registry
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#377: Four Seven

April 6, 2022

Four parents hatched a plan in the state of Texas in 2017. We've come a long way since then. And we need your help this week.

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Tags fundraising, foundation, study
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#144: Gala part 2

October 18, 2017

Part 2 of our story about the gala. They came, they laughed, they bid on stuff, they ate, they drank, and above all, they showed the love. Big time.

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Tags USP7, fundraising, foundation
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Screen Shot 2017-10-10 at 5.03.30 PM.png

#143: Gala part 1

October 11, 2017

We launch our foundation with a huge blowout—a gala at our house for our gal Tess. What does it mean, and how do people respond?

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Tags usp7, fundraising, foundation, rare disease
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#129: Talking to the Fine Folks at Ibotta about Tess and USP7

July 5, 2017

If you’re in the Tess Army already, it’s because you care. You know Tess personally, or you’ve joined us and been following our story. But how do we get strangers to join? 

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Tags USP7, foundation, fundraising
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Start at the beginning.

I've been writing about Tess since February 2014.

If you want to read more about my life with Tess, head over to my personal blog, bobigelow.com, and start with the first post.


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