September 18, 2019
Austria. The land of the Von Trapps. The composers Schubert and Liszt. And the chef Wolfgang Puck. And also the home of a guy whose work you might have seen, if you've ever gone to a rave in Vienna.
The future is now. We are about to hire Bruce Banner.
Sitting in a boat, in the mud. A long day with Tess.
Janet Mills. She's the governor of our fine state of Maine. And I want to meet with her ASAP to talk about Tess.
Keep your eyes peeled, my dad used to always say in the car when we were driving around, on the hunt for our destination. And I find these days, I'm still doing that.
Working on a new skill with Tess. One that you and I and almost everyone does several times a day.
The end of an era. With an awesome person, who's logged THE most hours with Tess.
Wacky music and clips of a possibly over-sugared kid. These just might be the key to getting Tess's attention.
Abundant sunshine, a long overdue task, and a chance meeting that makes me feel better about some heavy stuff.
A massive failure, by me, with Tess feeling quite amused about the whole thing.
Holidays aren't always Tess's favorite. After all, they interrupt something that is her favorite: the routine of going to school. But this year on the 4th, Tess had a blast.
Summertime for Tess. Our girl has been a busy bee, to say the least.
Tess stood up in front of her class and got an award last week. It was amazing to see, but my favorite part was what happened just after that.
Hope Solo. Dennis Eckersley. Dominik Hasek. All of these people have made great saves. But they got nothing on my wife.
How do you explain Tess to someone who doesn't know her but needs to get to know her? What details would you include?
Quick one for ya this week. Update on some super-dope studies happening with USP7.
It's like a Samuel Beckett play. A tiny room. People waiting. Including Tess. Have they always been in this room? Will they have to wait for all eternity, because they wait for something that will never take place?
Tess was nagging me this week. Really. She's like, Daaad! Come onnn!
Last Sunday Tess had a big day.
Picture it. You're at the dentist. The dentist says things like open wide. And you open your mouth. Except. If you don't understand simple commands like that. Then, it's a whole different ballgame.
We spent a full morning of walking around in the pouring rain with Tess. Something we do annually, each spring.
Super exciting news from France. And also from our driveway.
I was lucky enough to have some uninterrupted time with Tess recently. She showed me one of her favorite places.
A lunch table on a lazy Saturday. A plate of food. The occasional clink of a fork as we feed Miss Tess. And then, jackpot.
In a way, this year’s NCAA tournament surprised me more than ever.
An ill-advised purchase. A snack. And some unfortunate consequences.
We've had a rough couple of days for our girl. Simply put, Tess is not her usual happy self.
A bird falls from the sky. We try to solve a mystery about Tess. And we use a tool made by a mom, hoping for a day when those mysteries are behind us.
Part 2 of Vacation Tess. About our girl's reaction to something that happened to me. And about the future.
Traditionally, we pay a heavy price when Tess is on vacation. She loves school! So we're lucky. But sometimes we're in a world of pain when she can't go to school. Is that how it would go this time? Let me tell ya about February break.
Five years ago, Bo Bigelow quit his law job to stay home with his kids. Turns out his daughter Tess has special needs. She is almost entirely nonverbal and is only just beginning to walk at nearly age 6. She just started kindergarten, but functions at the level of a 1.5-year old. She's different. And now, so is everything else.
Follow their family's journey as they navigate Tess's relationship with her older brother, deal with school and special education, and try to solve the genetic mystery of Tess's ultra-rare disease.