This week, a nifty tech device gets strapped to Tess's wrist.
This week, an emerging artist in Maine works with multiple media and begins an exhibition at a local gallery.
This week, in the backseat of a car in Maine, someone had something to say.
This week, this very day in fact, Tess is celebrating a special birthday. This is sixteen.
This week, we're talking about Tess's high school experience. She's been a freshman for about 8 weeks now, so I'll tell you how it's been for her so far.
There are four little things you can do as a Hao-Fountain patient to move things forward in a huge way. I'm gonna tell you how these four went for Tess and why it matters.
Tess wanted something recently, and she used all her abilities to let me know what it was.
It's that time of year, and we just held our annual Hao-Fountain conference.
It's that time of year, and we just held our annual Hao-Fountain conference.
Recently Tess had a seizure and went to the ER, so I want to tell you more about it.
Recently Tess had a seizure and went to the ER, so I want to tell you about it.
Today I'll be telling you the first part of our recent trip to Syracuse.
Today I'll be sharing about summer and what's working for me so far.
Today I'll be sharing a bit about Tess's progress when it comes to spoken language.
She has a language deficit called Mixed Receptive-Expressive Language Disorder.
Today we're doing part two of our deep dive about Tess's sensory issues.
Today we're doing a deep dive about Tess's sensory issues.
Today we're talking about something that's been keeping Tess up at night. Literally.
Today we're talking about unhappy Tess. Annoyed Tess. And the mysteries of it all.
Today I'm gonna tell you about Tess's most recent IEP meeting and something we talked about for the first time in her education.
You're a parent or caretaker of someone with disabilities. It's crazy hard, but you can handle all the challenges that come your way, and Bo Bigelow will show you how.
Bo Bigelow is the father and primary caretaker of Tess, age 14, who has a rare genetic disorder that causes nonverbal autism, communication disorders, and epilepsy. Bo is an award-winning speaker, writer, filmmaker, and advocate for people with disabilities. He is also a practicing disability-rights attorney. Whether speaking up for Tess's education, navigating appointments and insurance coverage, or simply making Tess seen and known, he's developed tons of actionable tools to help you crush it and get it all done, without losing your own sanity and identity.
Bo is a co-founder of DISORDER: The Rare Disease Film Festival and The Disorder Channel.
Over the years, he's told Tess's story to NPR, NBC News, ABC News, The Washington Post, and The Atlantic.
This week, got a few fun stories for ya. Vignettes, if you will.