October 4, 2017
The T-Bird's bedtime ritual is a long and complicated affair. It feels like an hours-long magic spell, complete with eye of newt, to get her down. Here's what happened when her brother jumped in.
A friend shares a eye-opening article about people with intellectual disabilities. People like Tess. Who can't defend themselves.
Tess hits the pool. And there in the water, she pushes hard to break away from me. To be on her own.
An injury to Tess makes us stop and think. About her. And about ourselves.
Tess makes a move. Afterwards, is she proud of herself? You could say that.
Triumphs with Tess. Some of the highest high points of the past few years.
Taking you back, to some of the best stories of my epic fails with Tess.
After many years, Tess left the world of Apple behind. And we embarked on a new chapter. With an opening that was nothing short of mind-blowing.
Going back to a place that’s endangered our girl before. How can we keep her safe?
Trying to solve two problems. Both about hunger. Hunger that doesn't make any sense. And has no end.
We carried Tess for the first 5 years of her life. Because her hip issues prevented walking. It was a dark time for our heroes. Are we about to return to those days?
I’ve said before how I hate evaluations of Tess. How they make me feel, how they downplay her abilities. But recently I turned the tables on an evaluator. Mwah-hah-hah!
We switch up Halloween in an effort to honor Tess’s wishes. Of the four people in our household, how many end up happy on Halloween night?
To keep Tess happy, we’re pretty dependent on routine. Showing her that this thing happens, then this, then this. Always always always. Until it doesn’t.
Some relentless questioning, by an eight-year-old in Tess's class. He wants the truth. But can he handle the truth? Can we?
Showing our film about Tess at the rare disease film festival. What if you were in a room, an audience, full of people who get it? Then what?
Part 2 of our story about the gala. They came, they laughed, they bid on stuff, they ate, they drank, and above all, they showed the love. Big time.
We launch our foundation with a huge blowout—a gala at our house for our gal Tess. What does it mean, and how do people respond?
To help our girl, last May we started a foundation. We boldly promised to cure this disease that Tess has. So where are we on that?
Tess is messing with us. For real. Do we give her a time out? Or do we just laugh?
For episode 140, I'm doing something a little different this week. I'm sharing a talk I gave last week about our rare disease film festival. If we make a film about Tess, what will happen?
The roller rink. Perhaps Tess’s favorite place from this past summer. What happens when I bring her there?
Back to school. We see the biggest smile on Tess in weeks.
Every night since the end of May, Tess has gotten an injection, just before bed. What’s it doing to her—good things?
A full summer of work for our foundation is punctuated by a bizarre encounter over lunch.
A lucky pattern, one that lasts only a few minutes. But it has a profound effect on Tess for the rest of the day.
A long ride with Tess. It’s a mystery why she’s cranky. But we manage to solve it. Twice. Sort of.
At a certain point, I am unexpectedly not alone. I am irritated beyond belief, but I hold my tongue.
She’s not exactly heading to sleepaway camp anytime soon. What’s keeping the T-Bird occupied this summer?
Five years ago, Bo Bigelow quit his law job to stay home with his kids. Turns out his daughter Tess has special needs. She is almost entirely nonverbal and is only just beginning to walk at nearly age 6. She just started kindergarten, but functions at the level of a 1.5-year old. She's different. And now, so is everything else.
Follow their family's journey as they navigate Tess's relationship with her older brother, deal with school and special education, and try to solve the genetic mystery of Tess's ultra-rare disease.