I just wrapped up year two of a massive project. About Tess. And USP7. And some of the other 6999 other rare diseases.
Read More#246: Back to Global Genes Pt 2
Copying homework is exactly what you should do.
Read More#245: Back to Global Genes
In 2015, I was just starting out. Fresh out of the long, winding, painful chute of diagnosis with our T-Bird. What a difference 1460 days make.
Read More#61: Reach > Grasp
This week, Tess is getting ambitious. Every day we help her do more. But we're getting antsy for the real work to begin.
Read More#59: Busted
This week, somebody said something unfair about Tess's disability. And it came from somewhere we least expected. But luckily, a hero stepped in.
Read More#56: What School Districts Should Not Do to Tess
This week, I'm not playing games. The latest round in advocating for Tess. Fighting to get an eval that could change her entire life as we know it.
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