This week, part 2 of 2 about the Global Genes conference. I talk about the untiring advocates. Where they came from. What brought them here. And what makes them keep going.
OM Foundation - Bonner Paddock
The Joshua Frase Foundation - seeking a cure or treatment for myotubular myopathy
Run For Rare - Noah Coughlan
Run For Rare - coming soon - documentary by Ezio Lucido
Saving Case & Friends - Hunter Syndrome Research and Advocacy Foundation