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#38: These People Just Don't Get Tired

October 7, 2015

This week, part 2 of 2 about the Global Genes conference. I talk about the untiring advocates. Where they came from. What brought them here. And what makes them keep going.

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Tags Global Genes, Run For Rare, Saving Case and Friends, The Joshua Frase Foundation, Bonner Paddock, Hunter Syndrome, Myotubular Myopathy, Batten Disease
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Start at the beginning.

I've been writing about Tess since February 2014.

If you want to read more about my life with Tess, head over to my personal blog, bobigelow.com, and start with the first post.


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