Happy to tell you this week about the next phase of our search for a cure or treatment for Hao-Fountain Syndrome.
Read More#391: Marley
This week, we say goodbye to a dear member of our family.
Read More#390: Positive
Our family is totally packed, ready to jet off to Germany for the phenotyping study and a massive family conference. And at the eleventh hour, there's a slight curveball.
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#389: Unscheduled
It comes around every year. At the very beginning of summer, and also at the end. It strikes fear into the hearts of parents everywhere. The blank space in the calendar.
Read More#388: The Rain Song
The weather in Maine has been all over the place lately. One day it's in the 80s, next day you're putting on a fleece vest and wool socks. Let me tell you about some quality time I had with Tess one rainy day recently.
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#387: Travel Hacks - Part 2 of 2
Does the word travel instill fear in you? Do you wish you could benefit from the brilliance of others who have hacks for traveling? If so, you're in luck. This week, more travel hacks for ya.
Read More#386: Travel Hacks - Part 1 of 2
Travel. Remember that? Been a while since we went anywhere, but I have some favorite hacks that have helped our family in voyages past, and I'd love to share them with you.
Read More#385: The Reaction
On this holiday weekend, something extraordinary happened with our Tess. I wish you coulda seen it.
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#384: Prepping for an Extended Stay
We head to Germany in a month. We're trying to plan for everything. And there's one potential outcome that has us a bit concerned.
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#383: Sleepytime T
There's not a parent alive who doesn't wistfully talk about the days when their kid used to nap. This week, Tess hit the hay in the middle of the day for the first time in many years.
Read More#382: Thanks for Thinking of Me but I Already Have a Job
If you access the American health care system 40-50 times in a year, you're going to have to deal with some nonsense when it comes to insurance companies.
Read More#381: Decked Out
Did you know that there are five seasons in Maine? There are. This one, the one after winter and before spring, is called mud season. It's a great time to take Tess shopping for summer clothes.
Read More#380: Shhhh
Let's take a field trip with Miss Tess, shall we? It's spring break, and she knows just the place she wants to go.
#379: Pickles
I like pickles. Pickled things of all sorts, but definitely your standard dill pickles in the jar. Key phrase being: in the jar.
Read More#378: Tess Has a Passport
This is your captain speaking. We're gonna be cruising at 35,000 feet here. I note that today we're happy to welcome aboard Miss Tess Bigelow. She's been seated in a snacks and videos row.
Read More#377: Four Seven
Four parents hatched a plan in the state of Texas in 2017. We've come a long way since then. And we need your help this week.
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#376: Laugh It Up, Fuzzball
Let's check in with the T-Bird and our new pup. How goes it so far?
Read More#375: Penny
Someone new has joined our family. She's about ankle height, has boundless energy, and is slowly making friends with Tess.
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#374: Homeroom
You're muted. Those two words. Part of every zoom call you've ever been on, amirite? If you're on mute, no one can hear what you're saying. Except this one time. Someone definitely heard.
Read More#373: Tess Is Listening to Los Angeles
I recently had more time away from Tess than I've had in several years. Upon my return, we decided to listen to a distant city together.
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