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#389: Unscheduled

June 29, 2022

It comes around every year. At the very beginning of summer, and also at the end. It strikes fear into the hearts of parents everywhere. The blank space in the calendar.

It comes around every year. At the very beginning of summer, and also at the end. It strikes fear into the hearts of parents everywhere. The blank space in the calendar.

What can Tess do when she's not in school? 

Stronger Every Day is sponsored by The Disorder Channel. It's dedicated to rare diseases and other types of disabilities. Over 100 film and video titles, including a few video versions of this podcast. Available for free right now on Roku and Amazon Fire TV. The Disorder Channel. The most rare stories in the world. https://www.thedisordercollection.com/

Are you on our Discord server RARE & RELATABLE? It's a 24/7 chatroom for people dealing with rare diseases and other types of disabilities. We even have a closed channel for Hao-Fountain / USP7 families. Click here to join: discord.gg/7UFUPAFs8K

← #390: Positive#388: The Rain Song →

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Start at the beginning.

I've been writing about Tess since February 2014.

If you want to read more about my life with Tess, head over to my personal blog, bobigelow.com, and start with the first post.


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