Tess has a certain favorite activity. She's loved it for years. But as soon as you start doing that activity with her, she shuts it down. What is up with this?
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#371: An IEP Revelation
Another year, another IEP team meeting. Our Tess is in sixth grade, and we learned something new. Something that we shoulda known a long time ago.
Read More#370: Start Here
Life with this disease can be pretty overwhelming for families. Especially on that day you first get your diagnosis. If that's you, and this is that day, you've come to the right place.
Read More#369: Skis to the Kingdom - Part 2 of 2
We're on a mountainside. Tess is raring to go, to get going on skiing once again. Dressed and ready. How does she do?
Read More#368: Skis to the Kingdom - Part 1 of 2
A snowstorm blankets Maine. And one of Tess's favorite places opens back up for business.
Read More#367: Relax This Instant
There are times when Tess becomes a ball of tension. Jaw clenched. Brow furrowed. Fists of fury. How can we help her chill out?
Read More#366: Back and Forth
Our convos with Tess tend to be short. Usually they end after one word. But today was different.
Read More#365: I'm Walkin Here
A fresh set of eyes looks at an activity Tess does every day. There are some surprises, including one that Miss Tess springs herself.
Read More#364: Sneakiness
As our year draws to a close, we stay in and watch the snow fall. And Tess has one more surprise up her sleeve.
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#363: Happy Holidays
Let's do one final 2021 check-in with our girl, shall we?
Read More#362: Things We Know (about Tess's Language)
What can we know for sure? Are we in a simulation? Is anything real? And what exactly are Tess's abilities with language?
Read More#361: MetroMetroLand
Once upon a time, three men had an idea. It was completely insane. It probably shouldn't have worked at all.
Read More#360: A New Kind of PT
There's one symptom we see often in kids with Hao-Fountain Syndrome. It can cause major issues. And in our house we're trying to do something about it.
Read More#359: Grateful
The forecast: 35 and couch-y. Please join me in some holiday loafing.
Read More#358: Lady Man Club
I felt pretty spoiled last weekend. Because I had some QT with Tess.
Read More#357: Sleepless
I'm feeling rather broken at the moment. And I'm stumped about how to get out of it.
Read More#356: Vaxxed
We've all been feeling it. Time is behaving strangely, no question. But one especially long wait for the T-Bird has finally come to an end.
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#355: That's the Breaks
You know those punch cards? You've seen 'em at your local cafe, maybe, or your favorite sandwich shop. Buy 11 and your 12th one is free? I think we need that for hospital trips.
Read More#354: Uh-huh
I got in fights. In France. Mostly because I was American. So I did my best to blend in.
Read More#353: The Tess Army Gathers
Ninety minutes. A soccer field. And a gathering of some of Tess's greatest champions.
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