Our girl is, to say the least, incredibly busy.
Read More#254: Festival Pt 2
I'm a crier. I admit it. My wife busts my chops about it. I've been known to weep at cereal commercials. And in San Francisco this year, there was no shortage of tears.
Read More#253: Festival
I just wrapped up year two of a massive project. About Tess. And USP7. And some of the other 6999 other rare diseases.
Read More#252: I Really Can't Talk Right Now
Due to circumstances, Imma keep it short this week. Really short.
Read More#251: Back on Track
If they gave out punch cards for medical appointments, with frequent flyer miles for our Tess, she'd have enough points for a trip around the world at this point.
Read More#250: Special 250th Episode
My wife and I are good at some things. But we are terrible at sitting still, for even a short while. We are bad at the pastime of doing nothing.
Read More#249: Getting on the Map Pt 2
The map turns out to be the key to everything we're doing right now. I'm talking about the rare-disease map. We want to get on it. And it is slowly beginning to happen.
Read More#248: Getting on the Map
New Orleans. Known for beignets, Mardi Gras, and conferences about rare neurodevelopmental disorders.
Read More#247: For Tess, Seeing Is Believing
TBE. Maybe you know what this stands for.
Read More#246: Back to Global Genes Pt 2
Copying homework is exactly what you should do.
Read More#245: Back to Global Genes
In 2015, I was just starting out. Fresh out of the long, winding, painful chute of diagnosis with our T-Bird. What a difference 1460 days make.
Read More#244: The Light Fantastic
Austria. The land of the Von Trapps. The composers Schubert and Liszt. And the chef Wolfgang Puck. And also the home of a guy whose work you might have seen, if you've ever gone to a rave in Vienna.
Read More#243: Hiring Bruce Banner
The future is now. We are about to hire Bruce Banner.
Read More#242: Live and Die by the Tides
Sitting in a boat, in the mud. A long day with Tess.
Read More#241: I Want to Meet Governor Janet Mills
Janet Mills. She's the governor of our fine state of Maine. And I want to meet with her ASAP to talk about Tess.
Read More#240: Becoming a Noticer
Keep your eyes peeled, my dad used to always say in the car when we were driving around, on the hunt for our destination. And I find these days, I'm still doing that.
Read More#239: The Walnut Is Laughing
Working on a new skill with Tess. One that you and I and almost everyone does several times a day.
Read More#238: Megan
The end of an era. With an awesome person, who's logged THE most hours with Tess.
Read More#237: Sugar Baby
Wacky music and clips of a possibly over-sugared kid. These just might be the key to getting Tess's attention.
Read More#236: Worst Procrastinator Ever
Abundant sunshine, a long overdue task, and a chance meeting that makes me feel better about some heavy stuff.
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