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SED 563: Tess the Freshman

October 29, 2025

This week, we're talking about Tess's high school experience. She's been a freshman for about 8 weeks now, so I'll tell you how it's been for her so far.

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Tags education, CVI, cortical visual impairment
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Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 1 of 2

January 8, 2025

What happens when a medical professional dismisses your concerns about your child’s health? How do you move forward when you're made to feel like you're imagining things?

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Tags CVI, cortical visual impairment
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#493: The Eyes Have It

June 26, 2024

One day, in a nondescript office building in Portland, three adults give something to Tess. And she comes alive.

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Tags cortical visual impairment, CVI
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#421: Oh Say Can You See

February 8, 2023

CVI stands for Cortical Visual Impairment. Tess has it, as do many people with Hao-Fountain Syndrome. But did you know that there's something you can do about CVI?

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Tags CVI, cortical visual impairment
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#280: Let's Play

May 27, 2020

Often you give Tess a toy, and she's far more enamored of the box it came in. But she just got a toy in the mail that's a huge hit.

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Tags CVI, cortical visual impairment
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#261: The Lockup

January 15, 2020

Hot pizza. A rockin’ band. And a mysterious trigger for a very autism weekend.

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Tags autism, autism spectrum disorder, CVI, cortical visual impairment
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#247: For Tess, Seeing Is Believing

October 9, 2019

TBE. Maybe you know what this stands for.

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Tags USP7, CVI, cortical visual impairment
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#169: Switcheroo

April 11, 2018

A former foe returns. And like in cartoons, we forget past wrongs and he teams up with us for an episode.

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Tags CVI, cortical visual impairment, vision
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#147: I Have The Power

November 8, 2017

To keep Tess happy, we’re pretty dependent on routine. Showing her that this thing happens, then this, then this. Always always always. Until it doesn’t.

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Tags CVI, cortical visual impairment
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#135: Holidays in the Sun

August 16, 2017

A lucky pattern, one that lasts only a few minutes. But it has a profound effect on Tess for the rest of the day.

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Tags Prader-Willi Syndrome, Schaaf-Yang Syndrome, cortical visual impairment, CVI, object permanence
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#81: Tess's Island

August 3, 2016

This week:  trip or vacation? Just sit right back and you'll hear a tale, a tale of a fateful trip. To an island. And it's longer than a 3-hour tour.

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Tags travel, CVI
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#74: A Test We Actually Enjoy Taking

June 15, 2016

This week, does Tess have autism? And given her vision issues, can we ever really know this for sure?

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Tags autism, evaluations, CVI, cortical visual impairment
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Start at the beginning.

I've been writing about Tess since February 2014.

If you want to read more about my life with Tess, head over to my personal blog, bobigelow.com, and start with the first post.


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