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#196: More Stories from the Land Where Cures Are Found

October 17, 2018

Even MORE stories from Vegas, all about our USP7 conference, including a big announcement about what comes next.

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Tags USP7, Schaaf-Yang Syndrome, Prader-Willi Syndrome
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#195: Stories from the Land Where Cures Are Found

October 10, 2018

What we saw and did in Sin City, the land where cures are unexpectedly found.

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Tags Prader-Willi Syndrome, Schaaf-Yang Syndrome
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#151: No Such Thing As Full - Hyperphagia and Pica

December 6, 2017

Trying to solve two problems. Both about hunger. Hunger that doesn't make any sense. And has no end.

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Tags Prader-Willi Syndrome, USP7, hyperphagia, pica
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#150: Mysterious Man in Hospital Room

November 29, 2017

We carried Tess for the first 5 years of her life. Because her hip issues prevented walking. It was a dark time for our heroes. Are we about to return to those days? 

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Tags SCFE, Prader-Willi Syndrome, USP7, growth hormone, orthopedics
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#135: Holidays in the Sun

August 16, 2017

A lucky pattern, one that lasts only a few minutes. But it has a profound effect on Tess for the rest of the day.

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Tags Prader-Willi Syndrome, Schaaf-Yang Syndrome, cortical visual impairment, CVI, object permanence
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Start at the beginning.

I've been writing about Tess since February 2014.

If you want to read more about my life with Tess, head over to my personal blog, bobigelow.com, and start with the first post.


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