Due to circumstances, Imma keep it short this week. Really short.
Read More#251: Back on Track
If they gave out punch cards for medical appointments, with frequent flyer miles for our Tess, she'd have enough points for a trip around the world at this point.
Read More#250: Special 250th Episode
My wife and I are good at some things. But we are terrible at sitting still, for even a short while. We are bad at the pastime of doing nothing.
Read More#249: Getting on the Map Pt 2
The map turns out to be the key to everything we're doing right now. I'm talking about the rare-disease map. We want to get on it. And it is slowly beginning to happen.
Read More#248: Getting on the Map
New Orleans. Known for beignets, Mardi Gras, and conferences about rare neurodevelopmental disorders.
Read More#247: For Tess, Seeing Is Believing
TBE. Maybe you know what this stands for.
Read More#246: Back to Global Genes Pt 2
Copying homework is exactly what you should do.
Read More#245: Back to Global Genes
In 2015, I was just starting out. Fresh out of the long, winding, painful chute of diagnosis with our T-Bird. What a difference 1460 days make.
Read More#244: The Light Fantastic
Austria. The land of the Von Trapps. The composers Schubert and Liszt. And the chef Wolfgang Puck. And also the home of a guy whose work you might have seen, if you've ever gone to a rave in Vienna.
Read More#243: Hiring Bruce Banner
The future is now. We are about to hire Bruce Banner.
Read More#242: Live and Die by the Tides
Sitting in a boat, in the mud. A long day with Tess.
Read More#241: I Want to Meet Governor Janet Mills
Janet Mills. She's the governor of our fine state of Maine. And I want to meet with her ASAP to talk about Tess.
Read More#240: Becoming a Noticer
Keep your eyes peeled, my dad used to always say in the car when we were driving around, on the hunt for our destination. And I find these days, I'm still doing that.
Read More#239: The Walnut Is Laughing
Working on a new skill with Tess. One that you and I and almost everyone does several times a day.
Read More#238: Megan
The end of an era. With an awesome person, who's logged THE most hours with Tess.
Read More#237: Sugar Baby
Wacky music and clips of a possibly over-sugared kid. These just might be the key to getting Tess's attention.
Read More#236: Worst Procrastinator Ever
Abundant sunshine, a long overdue task, and a chance meeting that makes me feel better about some heavy stuff.
Read More#235: Oh No You Didn't
A massive failure, by me, with Tess feeling quite amused about the whole thing.
Read More#234: Island Time
Holidays aren't always Tess's favorite. After all, they interrupt something that is her favorite: the routine of going to school. But this year on the 4th, Tess had a blast.
Read More#233: Happy 4th
Summertime for Tess. Our girl has been a busy bee, to say the least.
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