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#88: Getting to Know You

September 21, 2016

This week:  we head to the elementary school. We risk bullies and getting stared at. And we meet a new educator. Will she get it about our Tess?

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Tags school, IEP, special education
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#87: Bring It On--New Battles in IEP-Land

September 14, 2016

This week:  we fight a new battle on the IEP front. Niceness hasn't gotten it done, so we throw our toys. And one voice comes through, loud and clear, at precisely the right moment.

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Tags IEP, special education
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#86: Au Contraire, Ma Soeur

September 7, 2016

This week:  the latest connection. More discoveries, this time from farther away than ever before, as we try to unlock the puzzle of USP7 for the T-Bird.

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Tags genetics, USP7
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#85: Tess Meets a Boy from Maryland

August 31, 2016

This week:  standing in the sea, up to our necks, Tess and I meet someone who's traveled some 500 miles. And that someone does something that I really, really like.

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#84: Super-Quick Genetics Update

August 24, 2016

This week: doing something a little different. Just a quick check-in, to give you a super-brief update on what's going on with Tess's genetics.  

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Tags genetics, Baylor, USP7
1 Comment

#83: PermaToddler (Intellectual Disabilities Part 2)

August 17, 2016

This week:  what if you had a toddler who never grew up? All that stuff you do, busting your tail to care for them -- what if you could never stop doing that? How long could you last?

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Tags intellectual disability, milestones
1 Comment

#82: Here's the Deal (Intellectual Disabilities Part 1)

August 10, 2016

This week:  an epic fail. It happened because I wasn't ready. I have a speech about Tess and it isn't finished. But it needs to be.

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Tags intellectual disability, milestones
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#81: Tess's Island

August 3, 2016

This week:  trip or vacation? Just sit right back and you'll hear a tale, a tale of a fateful trip. To an island. And it's longer than a 3-hour tour.

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Tags travel, CVI
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#80: Keys to the DeLorean

July 27, 2016

This week, if I knew then what I know now. Three things that I wish I could hop into a Delorean and go back to like 2012 and whisper into my own ear. 

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Tags GERD, TBE
1 Comment

#79: I'm On To You, Mike

July 20, 2016

This week, I talk about Mike Posner's "I Took a Pill In Ibiza," special ed directors, and fighting. Lots of fighting.

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Tags IEP, AAC, augmentative and alternative communication
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#78: Camper Tess

July 13, 2016

This week: Tess is a camper. She went to day camp and I was there to see it all. What's camp like for our girl?

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1 Comment

#77: If You Are Still Breathing, Vacation Is Good

July 6, 2016

This week:  Little Big Horn. Waterloo. Actium. And Bar Harbor, Maine. Sites of some of the greatest defeats ever. Can we avoid disaster with Tess this year?

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#76: The Golden Days of MC Hammer

June 29, 2016

This week:  Joan shows us more ways that she kicks ass. And I wax nostalgic for July days, lake swims, and MC Hammer.

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Tags autism
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#75: Top 5 Funniest Tess Moments

June 22, 2016

This week:  the top 5 funniest Tess moments of all time.  

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#74: A Test We Actually Enjoy Taking

June 15, 2016

This week, does Tess have autism? And given her vision issues, can we ever really know this for sure?

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Tags autism, evaluations, CVI, cortical visual impairment
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#73: Safe from Mosquitoes and Other Badness

June 8, 2016

This week, a group of heroes in Maine. They aren't busting bad guys on rooftops. They're in classrooms, one at a time. And they're on Tess's side.

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#72: Tess Doesn't Like Frozen

June 1, 2016

This week, who is Tess? What sort of girl is she? And what happens when she gets her first purse?

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#71: A Sherman Tank Instead of an Elevator

May 25, 2016

This week, a special report:  we're giving Tess an extra tight squeeze when we hug her. And we have a very good reason for this.

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Tags genetics, Baylor, USP7, Magel2
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#70: Apple vs My Car

May 18, 2016

This week, when something disastrous happens, you gotta call it a mixed blessing. Because in this case, it actually is.

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Tags augmentative and alternative communication, iPad
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#69: The Closest Match Yet

May 11, 2016

This week, Tess is a media star. She's all over the place. Which is nice. But there's a way that the snowballing effect helps her, and us, like never before.

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Tags genetics, USP7, media, Washington Post, Daily Mail, The Atlantic, Seattle Times, MyGene2, ABCNews, Texas Children's Blog
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Start at the beginning.

I've been writing about Tess since February 2014.

If you want to read more about my life with Tess, head over to my personal blog, bobigelow.com, and start with the first post.


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