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#35: We Find An Answer

September 16, 2015

This week, the next chapter of Tess's genetic journey. We finally, finally get some answers.    

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Tags genetics, genome mapping, USP7
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#19: Label My Kid Please

May 27, 2015

On this week's show, labels. Why we want one for Tess. Why, without a label for her, it's much harder to make plans for education and services. And why it seems like we might never get one. 

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Tags global developmental delay, diagnosis, genome mapping, undiagnosed syndrome, orphan disease, Manton Center for Orphan Disease Research, syndromes without a name, hip dysplasia
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Start at the beginning.

I've been writing about Tess since February 2014.

If you want to read more about my life with Tess, head over to my personal blog, bobigelow.com, and start with the first post.


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