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Building Your Child's Dream Team: Navigating Therapies for Rare Diseases

October 30, 2024

Building Your Child's Dream Team: Navigating Therapies for Rare Diseases

Are you feeling overwhelmed by the countless therapies and appointments involved in caring for your child with a rare disease?

In this episode, we’ll discuss practical solutions to the complex challenges parents of children with rare disorders face, from managing occupational, physical, and speech therapies to building a team that truly supports your child’s unique needs.

  • Learn how to maximize the benefits of essential therapies like OT, PT, and speech for your child.

  • Discover how to create a “dream team” of therapists and specialists who are fully invested in your child’s progress.

  • Gain the mindset tools necessary for collaborating with your child's therapy team without feeling overwhelmed.

Hit play now to find out how to ease the heavy load of caregiving while ensuring your child gets the best possible support!

← Refuel to Be Stronger: Quick Self-Care Hacks for Busy Rare Disease ParentsStronger Together: Aligning with Your Partner on the Rare Disease Journey →

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Start at the beginning.

I've been writing about Tess since February 2014.

If you want to read more about my life with Tess, head over to my personal blog, bobigelow.com, and start with the first post.


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