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SED 582: Tess Skips Breakfast

March 11, 2026

This week, it's an earth metal, a chemical element, a thing you can use when making fireworks. And hey, maybe we should drink it.

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SED 581: IEP Meeting - All About the Coffee part 1

March 4, 2026

This week, the three letters that have often invoked dread in many a parent are instead making me feel positively gleeful about our girl.

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Tags IEP, special education
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SED 580: Mystery Tess

February 25, 2026

This week, we're working hard to manage some new factors in Tess's life.

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SED 579: Get On Matrix Already

February 18, 2026

This week, we know what we need in order to get to a cure or treatment for Hao-Fountain syndrome. And you can help.

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SED 578: Get Well Soon

February 11, 2026

This week, a couple fun updates about Tess's re-entry after her seizure.

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SED 577: Many Moons

February 4, 2026

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 5 of 5.

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SED 576: A New Record

January 28, 2026

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 4 of 5.

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SED 575: Shark Fins

January 21, 2026

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 3 of 5.

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SED 574: The Woods

January 14, 2026

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility.

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SED 573: Into the Woods

January 7, 2026

This week, Tess has a life-threatening event, at a time when we're very far from the closest medical facility.

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SED 572: Holiday Break

December 31, 2025

This week, we're away on a ski vacation as a family. Let's check in with Tess.

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SED 571: Waiting

December 24, 2025

This week, we're on pins and needles, waiting for a very special milestone. 

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SED 570: Still Ill

December 17, 2025

This week, the illness continues, believe it or not. We'll check in on our girl.

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SED 569: The Cup Is Already Broken

December 10, 2025

This week, someone in our house is considerably under the weather.

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SED 568: Never Get a Car from GM and Other True Stories

December 3, 2025

This week, got a few fun stories for ya. Vignettes, if you will.

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SED 567: Thankful for Empatica and the Epimonitor

November 26, 2025

This week, a nifty tech device gets strapped to Tess's wrist.

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Tags seizures, epilepsy
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SED 566: Riding the Waves of Life

November 19, 2025

This week, an emerging artist in Maine works with multiple media and begins an exhibition at a local gallery.

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SED 565: Backseat Driver

November 12, 2025

This week, in the backseat of a car in Maine, someone had something to say.

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Tags communication, augmentative and alternative communication, device
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SED 564: Sixteen

November 5, 2025

This week, this very day in fact, Tess is celebrating a special birthday. This is sixteen.

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Tags AAC, augmentative and alternative communication
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SED 563: Tess the Freshman

October 29, 2025

This week, we're talking about Tess's high school experience. She's been a freshman for about 8 weeks now, so I'll tell you how it's been for her so far.

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Tags education, CVI, cortical visual impairment
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Start at the beginning.

I've been writing about Tess since February 2014.

If you want to read more about my life with Tess, head over to my personal blog, bobigelow.com, and start with the first post.


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