Today is Rare Disease Day. To celebrate our Tess and share stories about her disease, Hao-Fountain Syndrome, I'm counting down the top 5 most listened-to episodes of my podcast Stronger Every Day. #RareDiseaseDay #HaoFountainSyndrome
Coming in at number 5 is ep 344, "Twenty Percent More Tess."
I recorded this in August 2021, right after we witnessed Tess having a generalized tonic-clonic seizure. We saw a major change in her behavior the next day. Click to listen.
http://www.portlandrootsmedia.com/strongerpodcast/2021/8/18/344-twenty-percent-more-tess
Continuing the countdown, number 4 is ep 291, "Named."
In August 2020, after many years, Tess's disease got its name of Hao-Fountain Syndrome at last. This ep tells the story of the name, and how it felt for us to finally get it. Click to listen. #RareDiseaseDay #HaoFountainSyndrome
http://www.portlandrootsmedia.com/strongerpodcast/2020/8/12/291-named
Next in our countdown at number 3 is ep 268, "Included Part 3."
This one comes from March 2020 (mere days before the COVID lockdown), when we attended Tess's IEP meeting and talked about the importance of including her with her mainstream peers. Click to listen. #RareDiseaseDay #HaoFountainSyndrome http://www.portlandrootsmedia.com/strongerpodcast/2020/3/4/268-included-pt-3
The second most listened-to episode ever is ep 324, "It's Go Time."
In March 2021, after years of fundraising by you, Tess Army, our foundation finally embarked on its first research project about Hao-Fountain. Woot! Click to listen. #RareDiseaseDay #HaoFountainSyndrome
http://www.portlandrootsmedia.com/strongerpodcast/2021/3/31/324-its-go-time
And now, the number one most listened-to episode ever of Stronger Every Day is: ep 343, "Tess In the ER, Redux."
This is the one about Tess's second seizure, about how it went down, why, and what we did in its aftermath. Click to listen. #RareDiseaseDay #HaoFountainSyndrome
http://www.portlandrootsmedia.com/strongerpodcast/2021/8/11/343-tess-in-the-er-redux