A return to skiing. We heard about something amazing from Tess a week ago, and we had to see it for ourselves.
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#416: Slide Slide Slippity Slide
Tess hits the slopes for another season with Maine Adaptive, her ninth year of skiing. Only this time she decides to make a massive change.
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#415: Have Sequins, Will Travel
The mud room. It's our point of departure when we leave our house. And in that room, post-Christmas, Tess unleashes a neat-o surprise.
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#414: Fidget
Certain handheld objects give Tess a sense of peace. They keep her from getting bored.
Read More#413: Germany Part 3
The phenotyping study begins for our girl in Germany. How does Miss Tess do?
Read More#412: Germany Part 2
We explore Heidelberg, getting some z's but not a lot. And we finally meet up with the scientist who knows more about Hao-Fountain than anyone else.
Read More#411: Germany Part 1
Tess takes her first voyage across the Atlantic. At long last, we begin our trip to Germany for the phenotyping study.
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#410: A Crucial Waypoint
Germany, take two. Let's go see Dr. Schaaf.
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#409: Evaluation Exasperation
Evaluations. They're a huge part of our life with Tess. They aren't really fun.
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#408: Thirteen
We have a birthday girl in the house. This week, Tess turns the big one-three.
Read More#407: Tess Clams Up
Tess is such a talker. Not with words exactly, but a complex system of sounds and gestures. And one thing that can sometimes cause us a bit of concern is this: when she clams up entirely.
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#406: Bat-Signal Answered
A call for help. A bat-signal in the night sky of life with a rare disease. One man sees the signal. And he answers.
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#405: Tess and a Friend Conspire
What is Tess's favorite item from the lavatory? Raise your hand if you think you know the answer.
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#404: We Can Handle an IEP
It's time once again for the great powwow among experts to work on Tess's education. I'm talking, of course, about her IEP.
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#403: Being Seen
Gather round. I want to tell you a story about someone who really sees Tess.
Read More#402: A Food Tess Won't Eat
Apple picking. It's not just for people who need to get out of the house with their toddlers.
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#401: Calendar Invites
Calendar invites. Rare parents get a lot of 'em. And we pretty much have to click yes every single time.
Read More#400: Four Hundred
We've come a long way together, Tess Army.
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#399: Victory in Maine
Victory. Sometimes it's sweeter when you lose a whole bunch and almost give up hope and then finally prevail in the end.
Read More#398: Take the Red Pill and See How Deep the Rabbit Hole Goes
Foundations often start small, with a few parents around a kitchen table. But they grow. And ours is growing now, thanks to a special tool. Do you want to know what the Matrix is?
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