Like Ren in Footloose, someone takes the reins.
Read More#196: More Stories from the Land Where Cures Are Found
Even MORE stories from Vegas, all about our USP7 conference, including a big announcement about what comes next.
Read More#195: Stories from the Land Where Cures Are Found
What we saw and did in Sin City, the land where cures are unexpectedly found.
Read More#194: All the Feels pt 2
Part 2 about the Tess Army convening in Portland. A massive showing from dozens of our closest friends and family. And there is talk of ham.
Read More#193: All the Feels
The Tess Army convenes in Portland. A massive showing from dozens of our closest friends and family. And there is talk of ham.
Read More#192: Werd
An update about Tess's favorite word.
Read More#191: The Other Day I Saw a Bear
A bear sighting. Not at all dangerous, but instead delightful for Miss Tess.
Read More#190: The Crankypants
Half a pill, and Tess's personality changes from Rowdy Roddy Piper to Mister Rogers.
Read More#189: Resolution
It's not January 1, but we have a new resolution. For Tess during this upcoming school year.
Read More
#188: The Princess of Tides
Tess loves island life. Especially when no one else is around to experience it.
Read More#187: Days with Tess
Two people. Both with a laptop. Telling it like it is.
Read More#186: This Episode Is About Nothing
A phone call that makes me laugh long and hard.
Read More#185: Don't Even Say It
After a week on anti-seizure meds, we see what might be a personality change in our girl.
Read More#184: Aftermath
Checking in with Tess's neurologist. A guy we have some history with, actually. Trying to get some answers about the T-Bird.
Read More#183: Tess in the ER
Something happened to Tess. Something that fills us with dread.
Read More#182: Pipes
Our family puts our heads together to solve a new problem for Tess. And we totally crush it. Sort of.
#181: Travel Bug
Three things we need when we take the kids to Bar Harbor. Not just beer.
Read More
#180: 3 Years Back in Time
I've been banging my head against a digital wall for six months. And this week I finally broke through.
Read More
#179: 365 Shots
A girl. A prediction. A wrong prediction. And a really, really weird result after the one-year mark.
Read More#178: Four Extraordinary Boys
Four incredible boys unite to start up a lemonade stand, a special one. Not to get candy money, but to help our Tess.
Hey! Watch some local news features about the lemonade stand: |
"Local Lemonade Stand Makes National Difference" / News Center Maine - WCSH & WLBZ |
"Local Kids Raise Money For Rare Genetic Mutation Research" / WGME